STERLINGS VISION QUEST:Myasthenia Gravis

STERLING AND MYASTHENIA GRAVIS

Sterling was born with what the doctors called mild hypotonia.(muscle weakness)By the time he was four months old I could tell there was something wrong.
I felt this awful morbid feeling that if I didnt keep my child glued to me that he was going to die. I allowed him to sleep with me in my bed so I could monitor his breathing because at times and maybe, some of you mothers can relate, it was like I could hear his heartbeat so loud ,that he could be several inches away and, I could still hear it. It would skip a beat every so often.
My step mother would rant over and over again about having the baby in my bed. What would you do if you were married? Where would your husband sleep? well I didn't have to worry about that because sterling and I are alone . I felt the need to have him close no matter what anyone thought.
He was a horrid sleeper and would wake up screaming throughout the night.There was never one night that he got a good nights rest. Something was definately wrong. I used to lay him on my chest so that he could hear me breath and hear my heartbeat .
I asked the doctors to check his breathing and heart and told them my concerns .They told me again there was nothing wrong .He was still unable to hold his head up on his own at five months ,he would choke on saliva,food,formula.
By the time he was 15 months, he still had not taken his first steps, although, I was so happy he could finally pull himself up to standing position holding onto something but,it was for only a few seconds until he would fall again.
He did what they called the commando crawl in which he would drag his body across the floor with his left arm as if he had no legs.
The doctors though had him in physical therapy for the overall muscle weekness ,occupational therapy for a little of everything and speech therapy for very delayed speech,This happend four days a week with the only diagnosis of HYPOTONIA. You would think medicaid would want a better diagnosis than that for such expensive and extensive therapy for so long .
The choking and the aspirating got so bad that I asked the doctors to please help me. They did tests upon tests and said there is nothing they could find. He wasnt able to eat anything more solid than baby firsts until 14 months old and the doctors could still find nothing wrong they said except for HYPOTONIA. (cop out diagnosis)
Finally after three years of asking and probing and forcing the issue we were finally sent to a doctor named BEN WHITE an ears nose and throat specialist in Atlanta. That was a beautiful day. I finally had been sent to someone else whom thought that with all this child had gone through for the past three years that he deserved to finally have a real diagnosis. NO MORE COP OUTS.
DR white looked at his throat and said these tonsils have to come out for one. And, he wanted a sleep study done before sending us onto the pulmanologist.
It was done. Sterling diagnosed with severe obstructive sleep apnea. HE stopped breathing over 90 TIMES within a four hour period.The lab tech said he quit counting after 90 times. HIS HEART BEAT WAS IRREGULAR! Now it all came into perspective my fears. I knew down deep that if I let my baby stay in that crib alone that he would have died .The doctors said that most babys that stop breathing at night that many times usually dont make it to his age .They die of SIDS .
Next we went to the pulmanologist Dr graham (Our angel) who wanted to do a few more tests after hearing Sterlings history.They admitted him to the childrens hospital .They did another sleep study and a ph probe. Diagnosis: gastrointestinal reflux disease and barrettes esophagus!!! The reflux disease had actually gotten so bad it eroded his esophogus.Then they did tests barium,etc etc, adenoids so large they close off the naso pharynx.The tonsils and adenoids need to come out! But wait he has many other symptoms that arent yet explained so the doctor brought in a pediatric neurologist.Within an hour she came to the conclusion that sterling had MYASTHENIA GRAVIS. A form of muscular dystrophy. Blood tests out the wazzooo and yes thats it....they cant put a myasthenia child to sleep because most go into repiratory failure with sedation. so he must live with the large adenoids and tonsils. Within a period of five days he was diagnosed with five disease ,disorders.... And the neurologist funny enough (not funny haha) was from the exact same office as the neuro that said there was nothing wrong with him.
Now there are seven medicines he takes daily and he is sleeping through the night!!!!!!!!! Our lives have been changed so drastically. Its awful to be glad that your child is diagnosed with something.Its a horrible feeling to have relief that there is finally something wrong that they found. Do you know what I mean?..... Three years of doctors telling me basically that my imagination has gotten the best of me, to five days of diagnosis, after diagnosis ,after diagnosis. A complete and total shock to the mind and the spirit.A relief, though, that we finally know what to do now.

It is so very difficult to take care of a child as a single mom.But, trying to take care of a child that is ill is very, very difficult. Difficult Financially and emotionally and that leads to more emotional discomfort because you aren't able to provide everything that your child needs.
I created a small income by designing jewelry and selling it on the yahoo auctions.I have been disabled for several years from lupus and a few other diseases that had attacked me . The auctions helped me to get him his meds and dietary needs because he is deathly allergic to cows milk and wic stopped helping us a long time ago on formula. They dont help with soy milk .So that was another need.A very expensive one.
The auctions went well up until jan 10th when yahoo decided to start charging for submitting auctions. There is just no way I could afford that. so I have started a website selling MY CANDLE CREATIONS to help raise money for my sons needs.Its called Homemade From The Heart. Because everything is made from my heart to find a better level of life for my child and with God's help and The doctors and My customers we have made it and we continue to make it.http://www.primitivecandles.net




	STERLINGS VISION QUEST:Myasthenia Gravis



	ALL ABOUT MY SON STERLING THIS IS STERLING HE IS FOUR YEARS OLD

	STERLING AND MYASTHENIA GRAVIS Sterling was born with what the doctors called mild hypotonia.(muscle weakness)By the time he was four months old I could tell there was something wrong. I felt this awful morbid feeling that if I didnt keep my child glued to me that he was going to die. I allowed him to sleep with me in my bed so I could monitor his breathing because at times and maybe, some of you mothers can relate, it was like I could hear his heartbeat so loud ,that he could be several inches away and, I could still hear it. It would skip a beat every so often. My step mother would rant over and over again about having the baby in my bed. What would you do if you were married? Where would your husband sleep? well I didn't have to worry about that because sterling and I are alone . I felt the need to have him close no matter what anyone thought. He was a horrid sleeper and would wake up screaming throughout the night.There was never one night that he got a good nights rest. Something was definately wrong. I used to lay him on my chest so that he could hear me breath and hear my heartbeat . I asked the doctors to check his breathing and heart and told them my concerns .They told me again there was nothing wrong .He was still unable to hold his head up on his own at five months ,he would choke on saliva,food,formula. By the time he was 15 months, he still had not taken his first steps, although, I was so happy he could finally pull himself up to standing position holding onto something but,it was for only a few seconds until he would fall again. He did what they called the commando crawl in which he would drag his body across the floor with his left arm as if he had no legs. The doctors though had him in physical therapy for the overall muscle weekness ,occupational therapy for a little of everything and speech therapy for very delayed speech,This happend four days a week with the only diagnosis of HYPOTONIA. You would think medicaid would want a better diagnosis than that for such expensive and extensive therapy for so long . The choking and the aspirating got so bad that I asked the doctors to please help me. They did tests upon tests and said there is nothing they could find. He wasnt able to eat anything more solid than baby firsts until 14 months old and the doctors could still find nothing wrong they said except for HYPOTONIA. (cop out diagnosis) Finally after three years of asking and probing and forcing the issue we were finally sent to a doctor named BEN WHITE an ears nose and throat specialist in Atlanta. That was a beautiful day. I finally had been sent to someone else whom thought that with all this child had gone through for the past three years that he deserved to finally have a real diagnosis. NO MORE COP OUTS. DR white looked at his throat and said these tonsils have to come out for one. And, he wanted a sleep study done before sending us onto the pulmanologist. It was done. Sterling diagnosed with severe obstructive sleep apnea. HE stopped breathing over 90 TIMES within a four hour period.The lab tech said he quit counting after 90 times. HIS HEART BEAT WAS IRREGULAR! Now it all came into perspective my fears. I knew down deep that if I let my baby stay in that crib alone that he would have died .The doctors said that most babys that stop breathing at night that many times usually dont make it to his age .They die of SIDS . Next we went to the pulmanologist Dr graham (Our angel) who wanted to do a few more tests after hearing Sterlings history.They admitted him to the childrens hospital .They did another sleep study and a ph probe. Diagnosis: gastrointestinal reflux disease and barrettes esophagus!!! The reflux disease had actually gotten so bad it eroded his esophogus.Then they did tests barium,etc etc, adenoids so large they close off the naso pharynx.The tonsils and adenoids need to come out! But wait he has many other symptoms that arent yet explained so the doctor brought in a pediatric neurologist.Within an hour she came to the conclusion that sterling had MYASTHENIA GRAVIS. A form of muscular dystrophy. Blood tests out the wazzooo and yes thats it....they cant put a myasthenia child to sleep because most go into repiratory failure with sedation. so he must live with the large adenoids and tonsils. Within a period of five days he was diagnosed with five disease ,disorders.... And the neurologist funny enough (not funny haha) was from the exact same office as the neuro that said there was nothing wrong with him. Now there are seven medicines he takes daily and he is sleeping through the night!!!!!!!!! Our lives have been changed so drastically. Its awful to be glad that your child is diagnosed with something.Its a horrible feeling to have relief that there is finally something wrong that they found. Do you know what I mean?..... Three years of doctors telling me basically that my imagination has gotten the best of me, to five days of diagnosis, after diagnosis ,after diagnosis. A complete and total shock to the mind and the spirit.A relief, though, that we finally know what to do now. It is so very difficult to take care of a child as a single mom.But, trying to take care of a child that is ill is very, very difficult. Difficult Financially and emotionally and that leads to more emotional discomfort because you aren't able to provide everything that your child needs. I created a small income by designing jewelry and selling it on the yahoo auctions.I have been disabled for several years from lupus and a few other diseases that had attacked me . The auctions helped me to get him his meds and dietary needs because he is deathly allergic to cows milk and wic stopped helping us a long time ago on formula. They dont help with soy milk .So that was another need.A very expensive one. The auctions went well up until jan 10th when yahoo decided to start charging for submitting auctions. There is just no way I could afford that. so I have started a website selling MY CANDLE CREATIONS to help raise money for my sons needs.Its called Homemade From The Heart. Because everything is made from my heart to find a better level of life for my child and with God's help and The doctors and My customers we have made it and we continue to make it.http://www.primitivecandles.net

	Our Future Plans I plan on designing more and more WAX ART and continuing to grow with NEW AND INCREDIBLE CANDLE ART THAT LOOKS ABSOLUTELY REAL.. I HAVE CREATED MY OWN LINE OF OILS AND FRAGRANCES FOR MY CANDLES AND POTPOURRI Every purchase goes to helping my son with his needs.I want everyone to know, no matter how small or how big the purchase you touch our lives in a very, very special way. Please check out our website and write in our guest book so we know you liked everything. Sterling even helps me pick the FRAGRANCES TO SELL THE MOST. "Mommy, MAKE that one AGAIN that's so SMELLS GOOD", he says. So check us out and remember if you feel there is something wrong with your child please dont ever give up. Dont let the doctors make you feel crazy. Keep pushing.Keep asking. And most of all keep praying.In the long run it all makes the difference.

	OUR VISION QUEST Homemade From The Heart josie & sterlings auctions

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STERLINGS VISION QUEST:Myasthenia Gravis

ALL ABOUT MY SON STERLING

STERLING AND MYASTHENIA GRAVIS

Our Future Plans

OUR VISION QUEST